{"database": "press", "table": "releases", "rows": [["https://carson.house.gov/newsroom/press-releases/reps-carson-and-hudson-introduce-resolution-to-recognize-rare-disease-day", "Representatives Carson and Hudson Introduce Resolution to Support Rare Disease Day", "2020-02-10", "2020", "2020-02", "Democrat", "House", "IN", "Andr\u00e9 Carson", "C001072", "carson.house.gov", null, null, "legacy", "Washington, DC  Congressman Andr Carson (D-IN) and Congressman Richard Hudson (R-NC) have introduced a bipartisan resolution (H.Res 840) to support the designation ofthe last day of February as Rare Disease Day to honor the nearly 1 in 10 Americans living with rare diseases.\nI am honored to join my colleague, Rep. Hudson, in recognizing the millions of Americans bravely battling rare diseases and celebrating their courage, Rep. Carson said. It's also fitting that we are introducing this resolution during Black History Month, since African Americans are particularly vulnerable to rare diseases like Sickle Cell Anemia and Sarcoidosis. I hope our resolution shines a light on this struggle and strengthens the search for treatment and cures for African Americans, and all Americans, living with rare diseases.\nRare diseases impact millions of families each year who are faced with difficulties in obtaining diagnoses and treatment, said Rep. Hudson. I'm proud to co-lead this resolution to raise awareness for rare diseases and the need to develop more research and cures. As a member of the Energy and Commerce Committee's Subcommittee on Health, I'll continue to work on bipartisan solutions to improve health care and encourage medical innovation.\nRare diseases are defined as conditions that affect fewer than 200,000 people. Many of these conditions are serious and life threatening, and lack effective treatments. To make matters worse, more than half of those battling rare diseases are children.\nIn 2019, Rare Disease Day was officially observed by more than 100 countries. To mark this occasion, people living with rare diseases and their loved ones share their stories to educate researchers, health professionals, governments, and community organizations about how rare diseases affect them.\nLast year, Reps. Carson and Hudson introduced Rare diseases Advancement, Research, and Education (RARE) Act (H.R. 4228), which expands the ability of public health agencies to study rare diseases by improving treatment, research, and diagnostics of rare diseases through new and existing programs.\nThe full list of original cosponsors is below:\nRep. Cynthia Axne\nRep. Joyce Beatty\nRep. Gus Bilirakis\nRep. Susan Brooks\nRep. G. K. Butterfield\nRep. Peter DeFazio\nRep. Brian Fitzpatrick\nRep. Barbara Lee\nRep. Tom Malinowski\nRep. Doris Matsui\nRep. Lucille Roybal-Allard\nRep. Bobby Rush\nRep. Peter Visclosky", 1, "2026-03-30T12:14:52Z", "2026-03-30T12:14:52Z"]], "columns": ["url", "title", "date", "year", "month", "party", "chamber", "state", "member_name", "bioguide_id", "domain", "scraper", "source", "date_source", "text", "has_text", "collected_at", "updated_at"], "primary_keys": ["url"], "primary_key_values": ["https://carson.house.gov/newsroom/press-releases/reps-carson-and-hudson-introduce-resolution-to-recognize-rare-disease-day"], "units": {}, "query_ms": 0.8880337700247765, "source": "dwillis/congress-press", "source_url": "https://github.com/dwillis/congress-press", "license": "MIT", "license_url": "https://github.com/dwillis/congress-press/blob/main/LICENSE"}