{"database": "press", "table": "releases", "rows": [["https://robinkelly.house.gov/media-center/press-releases/rep-kelly-introduces-bipartisan-bicameral-bill-increase-diversity", "Rep. Kelly introduces bipartisan, bicameral bill to increase diversity in clinical trials", "2025-12-19", "2025", "2025-12", "Democrat", "House", "IL", "Robin L. Kelly", "K000385", "robinkelly.house.gov", "robinkelly", "https://robinkelly.house.gov/media-center/press-releases", "scraper", "WASHINGTON \u2013 U.S. Rep. Robin Kelly (IL-02) introduced the bipartisan and bicameral NIH Clinical Trial Integrity Act to increase the diversity of participants in clinical trials funded by the National Institutes of Health. This bill is also led by U.S. Rep. Brian Fitzpatrick (R-PA) and U.S. Senators Andy Kim (D-NJ) and Susan Collins (R-ME).\n\n\u201cWhen people are excluded from clinical trials, they are also excluded from treatments for chronic diseases. The data clearly lays out the fact that historically marginalized communities disproportionately suffer from certain illnesses and diseases \u2013 but we are excluded from clinical trials,\u201d said Rep. Kelly, Chair of the CBC Health Braintrust. \u201cI\u2019m proud to work with my colleagues across the aisle and in the Senate to ensure better representation in our clinical trials. No one should be left behind in the pursuit of medical breakthroughs.\u201d\n\n\u201cMedical breakthroughs are only as strong as the data behind them\u2014and data that excludes entire communities is incomplete by definition,\u201d said Representative Fitzpatrick. \u201cThe NIH Clinical Trial Integrity Act strengthens the integrity of our research by ensuring clinical trials reflect the full diversity of the patients they are meant to serve. This bipartisan, bicameral effort is about inclusion, accountability, and better science\u2014so that lifesaving treatments work for everyone.\u201d\n\n\u201cBiomedical research holds tremendous promise for treating many of the most costly and devastating diseases we face. To ensure that the benefits of cutting-edge medical science reach all Americans, it is important that participants in clinical trials reflect our overall population,\u201d said Senator Collins. \u201cBy encouraging long-term planning and improving demographic representation in clinical studies, this bipartisan legislation would help enhance the effectiveness of critical research that is conducted and sponsored by the NIH.\u201d\n\n\u201cWe have a responsibility to ensure Americans of all backgrounds have fair and equal access to treatment and care. This needs to begin with fair and equal representation in the earliest stages of health research and testing, including clinical trials,\u201d said Senator Kim. \u201cI hope we can come together to use this legislation as a tool to combat dangerous and persistent health inequities that are putting communities of color and diverse backgrounds at-risk.\u201d\n\nThe NIH Clinical Trial Integrity Act will:\n\n\u2022 Require NIH to work with clinical trial sponsors to develop clear and measurable recruitment and retention goals based on disease/condition prevalence as well as a rationale for specified goals and a recruitment plan;\n\n\u2022 Ensure the availability of less burdensome follow-ups during clinical trials (e.g. fewer follow ups, phone participation, weekend hours) to increase participation of underrepresented populations;\n\n\u2022 Launch a public awareness campaign across federal agencies related to research participation opportunities.\n\nThe bill has been endorsed by the Association of Black Cardiologists, Patient Access Network (PAN) Foundation, Blood Cancer United, Susan G. Komen Foundation, American Psychological Association, National Organizations for Rare Disease (NORD), TOUCH: The Black Breast Cancer Alliance, Doctors for America.", 1, "2026-03-30T01:40:41Z", "2026-04-06T20:09:11Z"]], "columns": ["url", "title", "date", "year", "month", "party", "chamber", "state", "member_name", "bioguide_id", "domain", "scraper", "source", "date_source", "text", "has_text", "collected_at", "updated_at"], "primary_keys": ["url"], "primary_key_values": ["https://robinkelly.house.gov/media-center/press-releases/rep-kelly-introduces-bipartisan-bicameral-bill-increase-diversity"], "units": {}, "query_ms": 2.4175848811864853, "source": "dwillis/congress-press", "source_url": "https://github.com/dwillis/congress-press", "license": "MIT", "license_url": "https://github.com/dwillis/congress-press/blob/main/LICENSE"}