{"database": "press", "table": "releases", "rows": [["https://www.ronjohnson.senate.gov/2025/12/sen-johnson-applauds-addition-of-duchenne-muscular-dystrophy-and-metachromatic-leukodystrophy-to-newborn-screening-panel", "Sen. Johnson Applauds Addition of Duchenne Muscular Dystrophy and Metachromatic Leukodystrophy to Newborn Screening Panel", "2025-12-16", "2025", "2025-12", "Republican", "Senate", "WI", "Ron Johnson", "J000293", "www.ronjohnson.senate.gov", "ronjohnson", "https://www.ronjohnson.senate.gov/press-releases", "scraper", "WASHINGTON \u2013 Today, U.S. Sen. Ron Johnson (R-Wis.) applauded the U.S. Department of Health and Human Services\u2019 decision to add Duchenne Muscular Dystrophy (DMD) and Metachromatic Leukodystrophy (MLD) to the Recommended Uniform Screening Panel (RUSP), expanding access to early detection for two devastating rare diseases. The senator recognized Trickett Wendler, Frank Mongiello, Matthew Bellina, and Laura and Jordan McLinn for their tireless work and advocacy.\n\n\u201cI championed Right to Try to give those with terminal or rare diseases hope and the freedom to try experimental drugs and therapies. I am grateful to Secretary Kennedy and to all those advocating for early screening of rare diseases to give families the chance to act when treatment can be most effective,\u201d Sen. Johnson said.\n\n\u201c[This] wouldn\u2019t have happened without you, Mr. Secretary, and the people that work with you tirelessly to do what\u2019s right. God bless you and thank you,\u201d Sen. Johnson concluded.\n\nSen. Johnson\u2019s full remarks can be found here.\n\nSen. Johnson\u2019s history of work with Right to Try can be found here.\n\n###", 1, "2026-03-30T01:40:41Z", "2026-04-06T20:09:11Z"]], "columns": ["url", "title", "date", "year", "month", "party", "chamber", "state", "member_name", "bioguide_id", "domain", "scraper", "source", "date_source", "text", "has_text", "collected_at", "updated_at"], "primary_keys": ["url"], "primary_key_values": ["https://www.ronjohnson.senate.gov/2025/12/sen-johnson-applauds-addition-of-duchenne-muscular-dystrophy-and-metachromatic-leukodystrophy-to-newborn-screening-panel"], "units": {}, "query_ms": 0.8554481901228428, "source": "dwillis/congress-press", "source_url": "https://github.com/dwillis/congress-press", "license": "MIT", "license_url": "https://github.com/dwillis/congress-press/blob/main/LICENSE"}