{"database": "press", "table": "releases", "rows": [["http://chriscollins.house.gov//media-center/press-releases/jim-kelly-and-chris-collins-lead-the-way-on-legislation-to-enhance", "Jim Kelly and Chris Collins Lead the Way on Legislation to Enhance Newborn Screening", "2014-12-11", "2014", "2014-12", "Republican", "House", "NY", "Chris Collins", "C001092", "chriscollins.house.gov", null, null, "legacy", "Congressman Chris Collins (NY-27) today released the following statement after H.R. 1281, Newborn Screening Saves Lives Reauthorization Act, passed the House and was sent to the President\u2019s desk to sign into law.\n\u201cSimply put, this legislation will save lives,\u201d said Congressman Collins.\u00a0 \u201cThis bipartisan effort answers the need for enhanced newborn screenings to give every baby born in this country the best chance at a healthy life.\u00a0 I want to thank Buffalo Bills Hall of Fame Quarterback Jim Kelly - a leading advocate for newborn screening \u2013 for fighting so hard for the reauthorization of this legislation on behalf of his late son Hunter and children all across this country.\u201d\n\"My wife Jill and I understand firsthand the devastation of learning that your child has a fatal disease after it\u2019s too late for lifesaving treatment,\u201d shared NFL Pro Football Hall of Fame Quarterback, Jim Kelly.\u00a0 \u201cToday, newborn screening for diseases like Krabbe gives children like my son, Hunter, the chance for the healthy life they deserve.\u201d\u00a0 \n\u201cIt\u2019s clear that Congressman Collins is committed to making our children\u2019s health a priority from the very start,\u201d Kelly stated.\u00a0 \u201cIt takes a team to really make a difference and we\u2019re so thankful for the Congressman\u2019s help in getting this important bill all the way to the President\u2019s desk.\u201d\nH.R. 1281 will continue to ensure infants receive comprehensive and effective screening by:\n \n\t\tReauthorizing Health Resources and Services Administration grants to assist states\u2019 efforts to improve their screening programs, educate parents and health care providers, and improve follow-up care for infants with conditions detected through newborn screening;\n\t\n\t\n\t\tRenewing the Secretary\u2019s Advisory Committee on Heritable Disorders in Newborns and Children, which maintains and updates the Recommended Uniform Screening Panel that states adopt and implement;\n\t\n\t\n\t\tAuthorizing a grant program to provide technical assistance to state newborn screening programs to track outcomes of infants identified through newborn screening and reauthorizing the Centers for Disease Control and Prevention (CDC) Newborn Screening Quality Assurance Program, and;\n\t\n\t\n\t\tReauthorizing the National Institutes of Health (NIH) Hunter Kelly Newborn Screening program, which funds research aimed at identifying new treatments and new screening technologies.", 1, "2026-03-30T12:14:52Z", "2026-03-30T12:14:52Z"]], "columns": ["url", "title", "date", "year", "month", "party", "chamber", "state", "member_name", "bioguide_id", "domain", "scraper", "source", "date_source", "text", "has_text", "collected_at", "updated_at"], "primary_keys": ["url"], "primary_key_values": ["http://chriscollins.house.gov//media-center/press-releases/jim-kelly-and-chris-collins-lead-the-way-on-legislation-to-enhance"], "units": {}, "query_ms": 1.5203941147774458, "source": "dwillis/congress-press", "source_url": "https://github.com/dwillis/congress-press", "license": "MIT", "license_url": "https://github.com/dwillis/congress-press/blob/main/LICENSE"}