{"database": "press", "table": "releases", "rows": [["http://crowley.house.gov/press-release/crowley-lance-chair-congressional-rare-disease-caucus", "Crowley, Lance To Chair Congressional Rare Disease Caucus", "2014-12-11", "2014", "2014-12", "Democrat", "House", "NY", "Joseph Crowley", "C001038", "crowley.house.gov", null, null, "legacy", "Caucus has served as platform for countless advocates, clearinghouse for ideas and solutions\nWASHINGTON, D.C. --- U.S. Representatives Leonard Lance (R-NJ) and Joe Crowley (D-NY) today announced they will continue to serve as the bipartisan Co-Chairs of the Congressional Rare Disease Caucus in the 114th Congress that will begin in January.\u00a0 The duo has chaired the caucus for four years.\u00a0 The Congressional Rare Disease Caucus is a forum for Members of Congress to voice constituent concerns, collaborate on ideas, facilitate conversations between the medical and patient community and build support for legislation that will improve the lives of people with rare diseases.\n\u201cI have a great interest in the work of the Rare Disease Caucus.\u00a0 I am impressed and humbled continually by the tireless advocates and their commitment to those suffering from challenging diseases \u2013 many without any treatments or cures.\u00a0 Our job in the Rare Disease Caucus is to help them meet with our Nation\u2019s leaders, question the decision makers in both the public and private sector and connect with the best minds in innovation.\u00a0 I look forward to building on our success in the new Congress,\u201d said Rep. Lance.\u00a0 \u201cCongressman Crowley has been a great partner and together we will continue to work toward results that make a positive difference in the lives of many.\u201d\u00a0\n\u201cPatients and families affected by a rare disease have been without a light at the end of the tunnel for far too long,\u201d said Rep. Crowley. \u201cWith one out of every 10 Americans suffering from a rare disease, it is absolutely critical that we do all we can to identify research opportunities, therapy options, and treatment. I look forward to partnering with Congressman Lance once again in leading the Rare Disease Caucus and continuing our efforts to build awareness of rare diseases and identify solutions to help the many Americans who are suffering.\u201d\nThe Rare Disease Caucus seeks ideas from those in the public and private sector to build bipartisan, realistic and effective solutions that might yield better treatments, safer therapies and - for some - even cures.\u00a0 The Caucus held nearly a dozen forums in the past year focusing on the cycle of disease, building a support network, innovative medical research and biomedical improvements and how the discovery and development of new treatments for chronic and rare diseases is changing lives every day.\u00a0 The bipartisan caucus has over 80 members.", 1, "2026-03-30T12:14:52Z", "2026-03-30T12:14:52Z"]], "columns": ["url", "title", "date", "year", "month", "party", "chamber", "state", "member_name", "bioguide_id", "domain", "scraper", "source", "date_source", "text", "has_text", "collected_at", "updated_at"], "primary_keys": ["url"], "primary_key_values": ["http://crowley.house.gov/press-release/crowley-lance-chair-congressional-rare-disease-caucus"], "units": {}, "query_ms": 1.4126801397651434, "source": "dwillis/congress-press", "source_url": "https://github.com/dwillis/congress-press", "license": "MIT", "license_url": "https://github.com/dwillis/congress-press/blob/main/LICENSE"}