releases: https://www.ronjohnson.senate.gov/2026/3/media-advisory-tomorrow-at-2pm-sen-johnson-to-hold-press-conference-duchenne-families-fight-to-maintain-access-to-existing-treatment
Data license: MIT · Data source: dwillis/congress-press
This data as json
| url | title | date | year | month | party | chamber | state | member_name | bioguide_id | domain | scraper | source | date_source | text | has_text | collected_at | updated_at |
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| https://www.ronjohnson.senate.gov/2026/3/media-advisory-tomorrow-at-2pm-sen-johnson-to-hold-press-conference-duchenne-families-fight-to-maintain-access-to-existing-treatment | ***MEDIA ADVISORY*** Sen. Johnson to Hold Press Conference: “Duchenne Families Fight to Maintain Access to Existing Treatment” | 2026-03-09 | 2026 | 2026-03 | Republican | Senate | WI | Ron Johnson | J000293 | www.ronjohnson.senate.gov | ronjohnson | https://www.ronjohnson.senate.gov/press-releases | scraper | WASHINGTON – On Tuesday, U.S. Sen. Ron Johnson (R-Wis.) will host a press conference in the Senate Swamp alongside patients and families who are losing access to ataluren, a treatment used for years by individuals with Duchenne muscular dystrophy. WHAT: “Duchenne Families Fight to Maintain Access to Existing Treatment” WHO: Senator Ron Johnson, Duchenne muscular dystrophy patients and families WHEN: Tuesday March 10, 2026 at 2:00 PM ET WHERE: Senate Swamp WATCH: Tune in live on X @SenRonJohnson and Rumble. NOTE: Credentialed media may RSVP to press@ronjohnson.senate.gov to attend. ### | 1 | 2026-04-04T05:28:40Z | 2026-04-04T05:30:10Z |